CPC (Chronic Pain Club)

[emerald city]

When the medical M.J law was ammended last november[Maine] ,i felt it was time to come out to my doctor and tell of my use of the herb..Under the freedom of speach thing there shouldnt be any harm in talking with any doctor about the use of medical M.J....Finding a DR who's willing to work with you is another issue..My PCP has been treating me and my pain for over 6 years,when i was ready to bring up the subject[MJ] i wrote a letter explaining my interest and reason for the appointment,to give him time to absorb the info and not put him on the spot unprepaired....Day of appointment came and we talked,told him i wanted no trouble for me or my family,or him and his,also didnt want to jepordize my pain contract and be taged as a druggie....but ..I had found that MJ helped with the pain and allowed me a better quality of life and i would like to be on the path of becoming a legal patient...The doctor had no problem with my use of Mj but didnt want to be the first[in the area/practice]to prescribe to a patient...I then asked if it would be apropriate for me to seek a second opinion,like a specialist,or would that be considered doctor shoping/drug seeking behavior....My doc said as long as i was upfront with my intent ,and he was aware of what i was doing there would be no problems with the pain contract or him.....A week later i went to another doctor and spoke with them about my on going pain management plan,the specialist called my PCP and i came home with a doctors note allowing the use of medical M.J under maine law...This is all part of my perminant medical record....has to be to be legal in maine......Side note;hard to find dr's will to prescribe pot, who work for managed care group.....If you really qualify ,there are good doctors outthere who will help..E.C

 

[DevilsReject]

rives quotes - DR - if your post was in reply to mine, I'm not sure where the triplicate script comment came from. I was talking about my Dr. having to start testing all of his pain patients to make sure that they were taking their med's and not selling them. I couldn't figure out a way to test positive for morphine and hydrocodone, but negative for pot. I am not going to go to every appointment with a sample of warm urine from someone who takes the same narcotics that I do, but doesn't smoke pot. I understand what you are saying, and it makes me happy that there are still a few reasons to live in California!

I never made any comment towards you or to single you or anyone else out, I was making a comment that meant if you live in a state like Cali that is more liberal than many states it might be ok to mention you smoke mj for meds because it helps relieve your pain, I don't go run every other day either to piss in a plastic cup and give it to my Dr. He just makes sure he follows the Federal Narcotics Guide Lines with any of his patients who he writes perscriptions for that are ( sample ) percs, valiums etc

Tone down your emotions, I am not here to argue with You or anyone else we are here because we all have something in common and my Intentions were NEVER to say anything rude to you or anyone else here or in the new forum Mary will be starting.

rives if you feel I sounded like it was meant in a way that gave you the wrong Impression then you need to realize and read it again or you misunderstood what I was trying to say.

 

[rives]

Hey DR, everything is cool. I wasn't getting wound up at all, just didn't understand the reference to the triplicate stuff if it was in reply to my post which was immediately above yours. I struggled quite a bit with trying to figure out the best way to deal with all these b.s. reg's, and finally came to the conclusion that, at least in California, doing everything above board and legal was the only viable option. Pretty strange decision after 40+ years of clandestine usage, if you know what I mean! It's funny, I swore up and down that I would never have a job that did drug testing because I've always felt that what people did on their own time was their business. Now I find myself in the position that I have to be drug tested in order to insure that I am taking drugs, and they can drop me if I'm not! I thought about trying the cleanse routines for THC, but had to test positive for morphine and Norco, and didn't know what the impact would be on them. Anyhow, I didn't think you were being rude, and I don't think that I was being emotional.

 

[DevilsReject]

NP rives

I understand about trying to do what's right and the same thing goes for me for 2 years after I was struck head on by a drunk driver the Insurance company was paying all my meds and when my Neurosurgeon was done with me and did his job all my pain meds were faxed to my primary care dr. who told me he didn't like the fact of him giving me percs & valiums for chornic pain because their addictive so I told him that after having 4 major 10 hour surgeries and my nerves being minipulated in my back and damaged plus the hardware and scar tissue from the 4 deep scars in my back and severe back spasms he has the choice of wrting me the meds/scrips or after 3 years with him I will change dr's so he complied.

Now after 2 years go by I get called at home ( my name ) this is tracy from dr. ( his name ) office the dr. now has to start taking a monthly drug test and this wasn't his policy but the MA I live in Boston Insurance company & state policy when any dr. write a script for narcotics, I had a few choice words and every time I take the test and leave my sample in it's cute blue plastic bag I feel like some criminal druggy but it's the law and BS state drug law policy as well as the Insurance policy to make sure I have the narcotics in my system and I'm not getting them then selling them.

Legalize medical marijuana and let me grow it at home and save millions of dollars on narcotics that don't work and drug testing clinics etc and people who need this cannabis for pain won't have to deal with this shit.

 

[Marywanna]

The Drs that approve a pts status here protect your privacy. They do not accept medical insurance,you pay for the visit. But when I got my renewel forms last month there was a new little sentence that stated by signing it I give the MDH permission to share my status with LEO to PROVE I have a card. And you HAD to check it. Bullshit. I knew there would be a list with names on it.

 

[rives]

In Cali you have the option of checking the box or not. The rationale for it was that they could verify the validity of your paperwork if necessary. It's kind of like gun registration, I think. There are lot's of good arguments for it, but somehow, sometime, it just feels like it might be used against you in some manner that those arguments didn't include!

 

[vonforne]

Hey all, who ever runs the Group needs to Maintain it on a frequent basis. Like for example, accept new member requests. And if you cannot be here all of the time assign someone to help you.

my 2 cents.

V

 

[emerald city]

Hey all, who ever runs the Group needs to Maintain it on a frequent basis. Like for example, accept new member requests. And if you cannot be here all of the time assign someone to help you.

my 2 cents.

V

I belive mary is wait on a i/c mag timeline before she can offically take it over from the kingofnewyork......Any thing i can do to help?? i plan on trying to check in every day....
It WILL be a good day..peace/out

 

[DoobieDuck]

Hey all, who ever runs the Group needs to Maintain it on a frequent basis. Like for example, accept new member requests. And if you cannot be here all of the time assign someone to help you.

my 2 cents.

V

Mary and I have both been working hard on getting this resolved. This thread seams to be working fine for now, for those of us needing to communicate about our pain issues. Thanks for your understanding..DD

 

[Marywanna]

Thinking about making it an open group. What do you guys think? Right now I am just answering posts that show interest so they know that someone is aware of it. I am counting on you members that have been here longer to help so I don't break any Forum rules. And for newer members,this can be a place that you feel comfortable expressing your feelings,good or bad. Nobody is going to judge you or blow you off because you are ill. That happens enough already in the real world,this will be OUR WORLD to lean on each other. Any suggestions would be appreciated...................DR has already picked a pretty cool logo. If you guys want the Group private so only other members can read,thats okay too. I just thought that making it open might encourage others to participate. So lets hear your thoughts! MW

 

[DevilsReject]

I can always help Mary, I'm not sure what the rules are as far as how long someone can help but because I aam in my house between I get up around 10:30am and stay Iside until 2:30 pm then I'mavailable again from 6:00 pm until around 2:30 pm early in the morning.

Thiers days or nights were I don't get out of the house at all so I'm sure I can help Mary is she so desires and ask for my help, I would be very honored to be a part of this thread or one Mary might want to start.

My little green Icon will be on but if I don't reply or answer someone It's because I'm doing things around the house so if anyone choses to pm me I will return the message within a few hours unless it's Mary lol

Never ever keep a woman waiting guys

 

[Marywanna]

Well DR,I am going to start right now on telling something about myself. I also have a very hard time going out. In the last 5 years,my body has told me what to do. I became very afraid to leave my home. And sometimes I don't go out for a week or more. Don't you feel strange about that. I need a nap everyday,this TNF drug is whipping my ass and taking all my energy away. But thats what it's supposed to do.....those commercials you see on TV for these drugs,the people are all happy and jumping around and saying how NORMAL they are. Then 15 minutes of side effects about how you can get TB,and Lymphoma. Real encouraging! Too bad they don't tell you it may take months before it works,and it might not work at all. I am still thinking it will work for me and am determined to ride again,I don't care if I need a front loader to get on that horse!

 

[herbwarts]

Well DR,I am going to start right now on telling something about myself. I also have a very hard time going out. In the last 5 years,my body has told me what to do. I became very afraid to leave my home. And sometimes I don't go out for a week or more. Don't you feel strange about that. I need a nap everyday,this TNF drug is whipping my ass and taking all my energy away. But thats what it's supposed to do.....those commercials you see on TV for these drugs,the people are all happy and jumping around and saying how NORMAL they are. Then 15 minutes of side effects about how you can get TB,and Lymphoma. Real encouraging! Too bad they don't tell you it may take months before it works,and it might not work at all. I am still thinking it will work for me and am determined to ride again,I don't care if I need a front loader to get on that horse!

I more then understand the feeling "Mary" Spinal damage chronic pain

 

[SeniorBuzz]

Don't feel like the Lone Ranger.

I'm quite content spending all my free time on the computer,
either twittering on political issue articles and discussions,
posting comments on news articles nationwide,
or developing my political blog.

I don't get out much anymore, once a week at the most.

 

[DevilsReject]

I pray for you every morning and all those who need to be healed and fully understand your pain because their are days when I can walk down my 3 flights of stairs with less pain then climbing back up the stairs and have to rest at each landing in between the stairs.

I use a walker to get up every time I lay down in bed wether it be a nap in the afternoon or if I'm watching tv at night due to my vertabea having a solid 5 inch steel rods from my spine up my back then it curves to the way my back is suppose to and after standing in massive pain hearing crunching and feeling like dropping to the ground as I hold on to my walker until my entire back is aligned and I take a few steps I can put the walker against my wall and walk around slowly and take my meds then once they kick in I feel better BUT NEVER PAIN FREE!.

Mary your such a sweety and if I could sweep you off your feet like a cool summer breeze and take your pain away I would because Your an Angel who understand my pain and we share thoughts and help each other get through tough days with a smile and mutual feelings in our every day fight to survive living with chronic pain.

 

[nattynattygurrl]

I can't even begin to tell you guys how happy I am about this group and thread!!
Thank you to Kony for seeing the need and proposing the idea; and to Mary and Co. for keeping it going!!

It's just so nice to have a place to talk and express my frustrations, to people who are going through similar circumstances! I can't tell you how key it is, at least for me, that you guys can relate. I don't feel comfortable talking about stuff like this, w/ people who are "healthy"; it just feels like whining when I talk to a healthy person. I was simply amazed as I read through everyone's posts; I found that I could relate to almost everything everyone said! It was strangely comforting.

Being sick and in pain can be so isolating, that's why this is so important. Like many of you mentioned, I too am housebound more than I'd like, (especially now that the weather is getting so nice. I just want to go hiking. It's sometimes tough watching people do stuff I want to be doing.) There was a period of time, (about a year), where I did not leave my house other than to see my doctors, about once/month. It was during that period of extreme isolation that I found and joined IC! It was such a comfort to find other med users. I always hoped that we'd get, (and keep), a thread going like this!!! I really hope this one will be long lasting! I know I'm not the only person who needs this place!! Even on days where I feel too shitty to post, I take comfort from reading your posts, strangely.

Thanks to everyone who is participating, (even if it's just reading.)
Perhaps we could get a chat group going too...maybe try to meet on a certain day and or time? I'm think we can even make our own temporary room, if we find we'd like the privacy. Anyways, just something to consider; sometimes it is nice to speak in 'real time'.

Here are the things I have found most helpful in managing my symptoms and pain (other than Rx's)...
- Canna-oil Salves and BioFreeze for temp. topical pain relief. (I was really skeptical about the salve, but I have found it extremely helpful for joint, skin and muscle pain. I hear it is good for lots of skin problems like psoriasis, burns, eczema, etc. The woman that makes it, uses it for pain caused by bone cancer. She is an amazing lady!!)
- Accessdx mentioned TENS units; I got one a few months ago and have found it to be fairly helpful, (though, it only helps my back, not my hip, for some reason.)
There is one other thing that has helped me find even more relief than Rx's...
- Canna-milk! I only have had the fortune to try it once, but it was a miracle; it brings tears to my eyes just thinking about it. I look forward to being able to make some myself eventually. I wish everyone with pain had access to it! Just beware, it tastes terrible, i recommend mixing it w/ chocolate or coffee or something.
As others have mentioned, I too find gentle, careful stretching to be helpful; not to mention trying to keep a positive attitude!! (Which sounds cliche b/c it's true!)
Those are my tips. Nothing revolutionary or that others haven't mentioned, but I find them helpful nonetheless.

I sincerely hope that this finds each one of you, doing and feeling well!!
Be well my friends!!

 

[SeniorBuzz]

it's feeling as if I have discovered another one of my callings

relating the growth, and empathy

that only 28 years of painful experience can bring

 

[herbwarts]

I can't even begin to tell you guys how happy I am about this group and thread!!
Thank you to Kony for seeing the need and proposing the idea; and to Mary and Co. for keeping it going!! I am very grateful!! So many times over the years, threads like this have started, only to eventually die out.

It feels so good just knowing I have a place to talk and express my frustrations, to people who are going through similar circumstances! I can't tell you how key it is, at least for me, that you guys can relate. I don't feel comfortable talking about topics like these, w/ people who are "healthy"; it just feels like whining when I talk to a healthy person. I was simply amazed as I read through everyone's posts; I found that I could relate to almost everything everyone said! It was strangely comforting.

Being sick and in pain can be so isolating, that's why this is so important. Like many of you mentioned, I too am housebound more than I'd like, (especially now that the weather is getting so nice. I just want to go hiking. It's sometimes tough watching people do stuff I want to be doing.) There was a period of time, (about a year), where I did not leave my house other than to see my doctors, about once/month. It was during that period of extreme isolation that I found and joined IC! It was such a comfort to find other med users. I always hoped that we'd get, (and keep), a thread going like this!!! I really hope this one will be long lasting! I know I'm not the only person who needs this place!! Even on days where I feel too shitty to post, I take comfort from reading your posts, strangely.

Thanks to everyone who is participating, (even if it's just reading them.) I think I've grown stronger already! Perhaps we could get a chat group going too...maybe try to meet on a certain day and or time? I'm think we can even make our own temporary room, if we find we'd like the privacy. Anyways, just something to consider; sometimes it is nice to speak in 'real time'.

Here are the things I have found most helpful in managing my symptoms and pain (other than Rx's)...
- Canna-oil Salves and BioFreeze for temp. topical pain relief.
- Accessdx mentioned TENS units; I got one a few months ago and have found it to be fairly helpful, (though it only helps my back, not my hip.)
There is one other thing that has helped me find more relief than Rx's...
- Canna-milk! I only have had the fortune to try it once, but it was a miracle; it brings tears to my eyes just thinking about it. I look forward to being able to make some myself eventually. I wish everyone with pain had access to it! Just beware, it tastes terrible, i recommend mixing it w/ chocolate or coffee or something.
As others have mentioned, I too find gentle, careful stretching to be helpful...not to mention trying to keep a positive attitude!! (Which is cliche b/c it's true!)
Those are my little tips. Nothing revolutionary or that others haven't mentioned, but I find them helpful nonetheless.

I sincerely hope that this finds each one of you, doing and feeling well!!
Be well my friends!!

I had a TENS unit after a while it would start inching I could stand it. The relief never out weight the want to scratch my back off.

 

[SeniorBuzz]

I pray for you every morning and all those who need to be healed and fully understand your pain because their are days when I can walk down my 3 flights of stairs with less pain then climbing back up the stairs and have to rest at each landing in between the stairs.

I use a walker to get up every time I lay down in bed wether it be a nap in the afternoon or if I'm watching tv at night due to my vertabea having a solid 5 inch steel rods from my spine up my back then it curves to the way my back is suppose to and after standing in massive pain hearing crunching and feeling like dropping to the ground as I hold on to my walker until my entire back is aligned and I take a few steps I can put the walker against my wall and walk around slowly and take my meds then once they kick in I feel better BUT NEVER PAIN FREE!.

Mary your such a sweety and if I could sweep you off your feet like a cool summer breeze and take your pain away I would because Your an Angel who understand my pain and we share thoughts and help each other get through tough days with a smile and mutual feelings in our every day fight to survive living with chronic pain.

DR, I didn't realize how good I was feeling
until I read what you just wrote.

seriously though, I seem to "recognize" my own pain more
when I read about others with the same, or similar, pains, and problems.

do I really want reminders?

 

[vonforne]

Sorry for that everyone. I was kind of in a ......not so good mood today. That was a little rude of me.

And I would like to introduce a friend of mine.......Herbwarts he is a friend from a now defunct site. And he is a Vet like me.

V