CPC (Chronic Pain Club)

[letmeout]

You were exactly right marrywanna ,I'm not sure if we are allowed to post outside links or not,but seeing it is a medical site it should be ok.
If it isn't okay to list this link then mods please delete as i'm trying to be helpfull not do something wrong.
There is some very good info here.
http://www.healthcentral.com/acid-reflux/c/question/83416/43159

 

[Marywanna]

You are welcome letmeout. Gut diseases seem to take a long time to find the correct DX. Drs like to say you have "spastic colon" and all other kinds of stupid names when they are all IBDs! It is good that we do have scopes for them now. But they still take way to long to give your DX. I have a friend that was told he had Colitis and allergies when he really had Celiacs Disease. He suffered for a long time untill he got fed up and started doing his own research. Yes we need Drs. But we also need to take control with our insurance companies and Drs so they work TOGETHER! Ask many questions. Take notes. And if you are able to get to Cleveland Clinic in Ohio,they have one of the best Digestive Disease centers in the world. When I was there last year for surgery,my surgeon made sure I had Marinol added to my meds. I had told him that I used mj to control nausea and vomiting. He was well versed in the research that has been done and did not blink an eye when I told him. The Marinol was documented in my chart,but the fact I used mj for nausea wasn't. And thanks for the site addy. I am always looking for more information, and new treatments. MW

 

[DevilsReject]

Ok so everyone doesn't want to say G`Morning huh

I must be Invisable or something, don't think I stink I showered and shaved

 

[letmeout]

Good morning to ya.

 

[DevilsReject]

Arthritis and Medical Marijuana​

I was reading and came upon this link and figured I would put it up
and share it with those who suffer from RA & Other Illnesses.​

http://www.safeaccessnow.org/article.php?id=4560​

 

[nattynattygurrl]

Good morning friends!
I hope everyone is hanging in there today.

Letmeout: Glad to hear you found some good info. about the protonix.

Mary: I also have a Dr. who is very anti-MJ and is suspicious of any alternative treatment. Which is weird, b/c he will Rx me Marinol if I ask for it, lol. However, his son, who is also a Dr. in his father's practice and is taking over most my day to-day treatment, seems much more open minded about it.
It really ticks me off that I have to go to a Dr. who's "specialty" is cosmetic stuff like Botox, to get my Med Rec. and my more "legit" docs, the ones who know me best, my Orthopedic Surgeons, Rheumatologist, and PCP, would never consider writing a rec. But will push Rx's, even Marinol.

DevilsReject: Sometimes it takes every bit of energy just to get washed up and dressed to make an appt. I sometimes take a shower/bath the night before instead, to preserve some of that energy for all the running around, (ok, slowly hobbling, is more honest, lol), the next day will entail.

Herbwarts: I feel the same way about people asking "how are you".
Even after all this time, I still don't know how to handle it. Generally, they are asking as a 'pleasantry', they don't really want to know how you really are, or a litany of complaints. So "I'm ok, thanks", is my standard answer. But, there are definitely times where I just want to cry and scream "I'm in agony!!!" But I don't feel comfortable verbalizing my complaints and whining, most of the time. It really drives me crazy though when I overhear someone being asked that Q and I hear them answer that they are "terrible" b/c of some trivial complaint! That drives me nuts!!!

So nice to have a place to talk about stuff like that!! ^ And to find that I am not the only person who has these thoughts and feelings.
I try to be positive and cheerful, but sometimes....it's tough and the pain gets the better of me. And boy, do I beat myself up, when it does.

Anyways, glad you guys are here!
Hope everyone is doing ok and hanging in there!!!!

 

[herbwarts]

Yea I know what you mean yelling 'my back is killing me" normal turns people off. I tell them "like I got hit by truck" and very the size of the truck for the weather condition . I know a lot of list'ers this hurts and that hurt on and on. That why it gets under my skin.

 

[GilligansIsle]

Natty

I usually respond to he "How are you?" question with UNBELIEVABLE...
that covers it both ways.

 

[DevilsReject]

When I walk with a cain and see a person I haven't seen for some time they ask why I'm walking with a cain and after I tell them bla bla bla they say well at least your alive Alive?? Come live a day in my shoes and see after the pain and meds and side effects from the meds and the bathroom trips and the headaches and blood work, etc etc and they make a dumbass comment like that is an understatement.

 

[nattynattygurrl]

Gilligan: Thank you for the fantastic suggestion! I'm def. gonna use that one!

Wow, DevilsReject: I am shocked that someone would actually have the nerve to say that to someone who is clearly in pain.
I have no idea how I would react to a comment like that...I suppose it depends on what kinda mood they found me in, lol!
or or possibly even

I have noticed that people definitely react differently to me when I have my cane. Perhaps not as much as I imagine, but I feel like people stare at me. But other than that, people generally seem to be a lot kinder to me; practically running to doors to open them for me. I can see their entire thought process as they start to let a door shut on me, then look down and notice my cane...they look surprised, then embarrassed and jump to try to stop and hold the door.

You know, I kinda feel like I might have mentioned all that before?... (dejavu?)
If I am repeating myself, I apologize.
My memory is just shot, a symptom of Fibromyalgia. So I tend to repeat myself a lot, w/o realizing it. It's very embarrassing.

Since I brought it up, I'm curious; has anyone else w/ Fibromyalgia noticed problems w/ their memory? ie: "brain fog"?
Things I once knew backwards and forwards, are now difficult for me to recall, and my short term memory......wait, what was I talking about?

Hope this finds everybody properly medicated!!
Hang in there CPG'rs! Strong like bull!!

 

[letmeout]

I don't have fibramialga but the pain killers give me the brain fog for sure.I sometimes get in the middle of a sentence and forget what i'm talking about.Never did that on mj but ever since i started taking pain killers my memory is shot.

 

[DevilsReject]

Wow letmeout you just opened up the answer to why the last 2 years when I talk about something or just hold a normal conversation I forget what I was talking about or can't find the right words to explain a story and my wife will mention or remind me what I was talking about and I would ask her if she noticed anything strange about my forgertting certain words or having a hard time holding a conversation.

I never realized it could be the medications, Thanks letmeout for mentioning that because now I can check into my meds and their side effects.

 

[letmeout]

I sometimes forget my cousins names when i have been around them all my life.Now tell me that wouldn't make you feel pretty stupid,I know it does me.Just another side effect of the damn chemicals the doctors want to force feed you.
I have read the side effects on my meds , but nowhere in there does it say that it may make you feel stupid,lol.Maybe i should write the pharm company and tell them to list stoopidness as a side effect.
It really does make me feel stupid when i forget what i'm talking about in the middle of a sentence.
I have talked to other people that are on painkillers and they all say the same thing.

 

[DevilsReject]

Very true, I hate when I see a nicely dressed woman or man with a suitcase sales rep from the med companies who visit with the dr's and sell them new meds and then the dr's change our meds and say to us try these new meds their new and improved or better and we are suppose to believe them and have faith in them but who knows what gifts or luxury Items they receive for selling us these meds and billing our insurance companies while we get the side effects etc..

Pharacudical companies and Dr's make bonds for years and I'm sure the dr's get nice xmas cards with football tkets or baseball tkets or maybe a nice gold pen set etc

 

[leeroy420]

May i have a invitation?

 

[nattynattygurrl]

Hi there Leeroy;
I *believe* you need 50 posts to joint social groups...
You've got some time to get your post count up, though since they won't be setting up the new group until around 6-13.
(I forget what the exact date was, sometime in the next week or so.)

Feel free to post here until then, and help work towards your 50 posts!
Anyways, hope this helps Leeroy!

 

[nattynattygurrl]

^^ lol, nice typo... ^^
"I *believe* you need 50 posts to joint social groups..."

My fingers are used to typing 'joinT' I guess.

 

[DevilsReject]

At least your in the right place to make that type of typo

 

[BubsNugs]

lol
freudian slip fer sure

What really pisses me off is when im just sittin around ,like outside tonight with neighbours, and pain just gets worse n worse and im doin fuck all just sitting there grumble grumble

O Well it could allways be worse eh ?


Peace

 

[DevilsReject]

Hello Bubs, Your feelings and thoughts are not felt alone my friend I am always trying to hide my smasms or severe pain I get when sitting either at home or out when I get a neuropathy nerve spasm or I go to get up and my knee wants to give out do to my RA acting up.