[mr.brunch]

https://www.independent.co.uk/news/uk...16596.html?amp

Government refuses medical cannabis to six-year-old epileptic boy who had 3,000 seizures in a year

‘He deserves to have a wonderful life full of joy, not the pain he currently faces,’ say his parents
Maya Oppenheim Sunday 18 February 2018

Members of the all-party parliamentary group on drug policy reform have urged the Government to help Alfie PA
A six-year-old boy whose rare form of epilepsy dramatically improved after using cannabis has been denied a request for a medical cannabis licence by the Government.

Alfie Dingley, from Kenilworth in Warwickshire, has a childhood epilepsy (PCDH19) that causes multiple seizures.

He experiences up to 30 fits a day and once had 3,000 seizures and 48 hospital visits in the space of just a year.


The young boy saw his seizures considerably reduce when he travelled to the Netherlands to take a cannabis-based medication prescribed by a paediatric neurologist last September.

It is estimated that with the Dutch cannabis medication Alfie would have about 20 seizures a year.

But the Home Office has denied the family’s request for medical cannabis oil, which remains illegal in the UK.

It said the drug “cannot be practically prescribed, administered or supplied to the public”.

Alfie’s mother, Hannah Deacon, said while her son was abroad he managed to go 24 days without suffering a single attack.

“You’ve got to fight for your kids, I want to know that I’ve done everything I can,” she told the BBC.

“It’s very rare and very aggressive, there are only nine boys in the world with Alfie’s condition,” she added.

“We never imagined how well it would work. He’s just a six-year-old boy, he deserves a happy life. We’ve found something that makes him happy and now we’ve got to take that away.”

She said his cannabis dose was “very small” and he was taking just three drops of the oil. In stark contrast, the volume of steroids he is currently needing to treat his condition can sooner or later lead to organ failure, psychosis and even death, according to Alfie's mother.

Members of the all-party parliamentary group on drug policy reform have urged the Government to help Alfie’s struggle.

Writing on their campaign website Alfie’s Hope, the parents said they were fundraising for their son to go abroad to take the treatment. The family were forced to return home from the Netherlands because they did not have medical insurance in the country.

“We are now campaigning for him to have a chance to use medical cannabis in his own country along with all other children with epilepsy that is unresponsive to pharmaceutical drugs,” they said.

“We are also fundraising to enable us to take Alfie abroad to give him the treatment we believe will help him as it is currently still illegal in this country. We feel unable to wait until the law is changed in the UK.

[JustSumTomatoes]

This is both disgusting and saddening. There is a proven medication that will allow someone, a child at that, to have an improved quality of life and ease suffering but they are completely denied it. If this were any other plant or drug/medication there would be no issue but most governments have zero tolerance for anything related to MJ, even if it doesn't get someone high.

[DARKSIDER]

I'm proud of my country but this british government is the lowest of the low.... mr brunch I'm glad you posted this ive been following this for a while now... here is the links to his page.....

https://alfieshope.co.uk/

https://www.facebook.com/alfieshope/?fref=ts


for some reason that top link is not working when you click on it... so just copy into browser sorry guys.

[noyd666]

all Governments need a good feed of laxetts and a good flush down the toilet.

[troutman]

The people responsible for stopping a kid from getting medical help deserve to burn.

I'm sure if it were their kid something would be done.

I blame mostly Big Pharma for this.

[Gypsy Nirvana]

Alfie's Mum was on the BBC morning program this morning, and that is a good thing for medical cannabis in the UK. Hopefully she will get the backing she needs from our usually useless politicians, and her little boy can lead a much better life with the medication he needs.

[Bush Dr]

They've avoided saying that the "medicine" he'll get instead will permanently damage him and he will HAVE to be institutionalised as soon as he's 18

The decision by unelected scum is just a measure of how far this also unelected government does not represent the people

[siftedunity]

Originally Posted by Bush Dr

They've avoided saying that the "medicine" he'll get instead will permanently damage him and he will HAVE to be institutionalised as soon as he's 18

The decision by unelected scum is just a measure of how far this also unelected government does not represent the people

Even the elected ones are scum. Ive often wondered how they sleep at night??

[JustSumTomatoes]

Originally Posted by siftedunity

Even the elected ones are scum. Ive often wondered how they sleep at night??

Some people sleep with a clear conscious, others sleep with an empty one.

[Easy7]

There is this medical belief that mj brainwashes people. Heard it myself from a soviet born dr.

They seriously fear they will lose their stranglehold on society.