What's new
  • Please note members who been with us for more than 10 years have been upgraded to "Veteran" status and will receive exclusive benefits. If you wish to find out more about this or support IcMag and get same benefits, check this thread here.
  • Important notice: ICMag's T.O.U. has been updated. Please review it here. For your convenience, it is also available in the main forum menu, under 'Quick Links"!

Understanding Fibromyalgia..personal accounts and stories

lost in a sea

Lifer
Veteran
huh your right hydro bro,, another operation paperclip scientist that worked on weaponised technology tested on americans,,, there is a major pattern here..
 

bigdaddyc9

Member
I have a Fibro diagnoses..actually this is my official diagnoses on my medical records...Fibromyalgia x Myofascil Pain Syndrome xChronic Fatigue Syndrome..all brought on by major injuries resulting in 13 major orthopedic sugeries from Bankhart(capsular shift,major open surgery) of left and right shoulder to Ulanr Nerve Transpositon bi-laterally as well as carpal Tunnel surgery bi-laterally and several knee surgeries from ACL x 3 to Lateral patella release and several meniscus repairs.I am currently prescribed 480mg of Oxycontin(generic doesnt cover me) and 180mg Roxicodone.All these opiates have given me Cyclic Vomiting and I am prescribed Marinol for this.I have jumped through every hoop medicine has thrown at me.I am a model patient and have tried every med/Therapy asked of me.I lost 170lbs vomiting in 6 months..could only eat Tapioca pudding and drink Pepsi.I am insulin dependant diabetic as well.My quality of life sucks and only relief I get is from med qulaity strain cannabis..White Russian and other white varieties seem to work best.But since I live in Ny I cannot use cannabis in EARNEST or I could save my wifes insurance company thousands of dollars.Cannabis helps me sleep better..2 hours a night is better..I cannot eat without it and it is killing me slowly.I nod out on opiates 24/7 and cannto drive any longer.Weather effects me the most.If a low pressure system barrels through..KILL ME!I have a hottub and that helps.I went to PT and all that forever and all it did was make it worse.My Pain Doc wants me to switch to methadone.I want to switch to all cannabis.I am a Homeowner,Taxpayer and have 2 extra smart kids..one is Pre-med with a 4.0 and other has accelerated classes in high school.State reps hear me if you do not bring med pot vote to fruition in Ny your chances of re-election are slim as I am connected and you will face a terrible battle to get re-elected.Do the right thing Rep Skelos and hannon or your career in politics is in jeapordy.Peace and One Love..BigD also if I get cold even on a day when its 90 outside and a breeze hiots my sweaty body,I vomit for hours..It sucks.
 
M

Mtn Dew

Im 31 with Fibromyalgia . The pain does suck. A great nights sleep once in a blue moon ,and I wake feeling like I hit the lottery.

The pain is awful though it feels like the nerves, bones, tendons ,joints all ache from the inside out all at once. Sitting at my computer or doing heavy lifting really gets things flared up and going. some days my lady rubs me until my skin feels like its going raw . Still does nothing tho but relax my brain some . I feel sorry for all of u out there with this . This disease makes me feel like im 65.

Any of u got the rods in your back with the shocker pack thing. Told the doctor u aint touching my spine nor will u touch my eyes. GTFO here with that machine . Ill suffer before someone cuts me back open or does anything to my eyes:tiphat:
 

Rinse

Member
Veteran
Ive had FM for years and all doctors want to do is tell me Im deppressed and drug me up on anti deppressants - fuck that!
Normal daily tasks are a real chore when you have this, you can become a hermit real quick.
Feels like a sumo wrestler is sat on you, or like you got hit by a truck, every joint aches.

Weed really improves the quality of life, I find both indica's and sativa's can be great it depends more on the strain - Most important for a sufferer of FM is that the high is very clean with no burnout or brain fog - coz we already fell like that most of the time.
The body buzz must be the pure warm type - like certain African sativa's have.
Not the tiring, gravity distorting type found in many modern hybrids.

I dont find warm baths to help as some others have said, actually cold showers seem to be better for me, but many of us have messed up body temperatures and can fell uncomftably hot and cold simultaneously.

Dont force yourself to exercise, makes it worse ime, do plenty of stretching, massage and light stuff like walking and growing (maybe not guerrilla lol)

Dont let the doctors have their way and drug you up, they cant help you, at least not at this time, you can only help yourself.

Fuck other peoples opinions, they will not understand (would you understand how FM felt if you never had it?)

The good news is for those of us suffering from this bitch of a disease - you can improve your symptoms - to a degree -
Everyone is different but following these things has helpedme and can help for most of us:

- Get Direct Sunlight.
- Eat natural foods, plenty of raw organic stuff with healing phyto-compounds and anti oxidents. Grow your own food as much as possible.
- Seek out foods with Zinc and Magnesium. Eggs, Cacao, Pine nuts - Super foods.
- Cut out wheat or lower it from your diet, gluten is not well tolerated by Fm sufferers.
- Smoke that good shit.
- Grow that good shit - growing plants has a healing effect.
- Lower you stress - take it easy, dont critisize yourself or force yourself to do nothing for no one.
 

Enchantre

Member
I have Fibro and CMP... and I have had, for most of my life. Many of my symptoms started before I was even a teenager, and now I'm 53, and still dealing with the pain.

Massage
MMJ
No Grains, Beans, Seeds, or Soy
No PUFA
Grass-fed beef, pastured pork, backyard eggs, grass-fed raw dairy, and wild-caught salmon... these are my main tools against the pain.

I'm making some progress. Most of this has only been the past year, and the MMJ only since December.
 

headband 707

Plant whisperer
Veteran
Well I also have FMS and so what, half the doc's I see don't even believe FMS exists ffs.. So what then? lol... There is also talk the FMS also comes from Plum Island and I personally believe that might be true. headband 707
 

headband 707

Plant whisperer
Veteran
I have a Fibro diagnoses..actually this is my official diagnoses on my medical records...Fibromyalgia x Myofascil Pain Syndrome xChronic Fatigue Syndrome..all brought on by major injuries resulting in 13 major orthopedic sugeries from Bankhart(capsular shift,major open surgery) of left and right shoulder to Ulanr Nerve Transpositon bi-laterally as well as carpal Tunnel surgery bi-laterally and several knee surgeries from ACL x 3 to Lateral patella release and several meniscus repairs.I am currently prescribed 480mg of Oxycontin(generic doesnt cover me) and 180mg Roxicodone.All these opiates have given me Cyclic Vomiting and I am prescribed Marinol for this.I have jumped through every hoop medicine has thrown at me.I am a model patient and have tried every med/Therapy asked of me.I lost 170lbs vomiting in 6 months..could only eat Tapioca pudding and drink Pepsi.I am insulin dependant diabetic as well.My quality of life sucks and only relief I get is from med qulaity strain cannabis..White Russian and other white varieties seem to work best.But since I live in Ny I cannot use cannabis in EARNEST or I could save my wifes insurance company thousands of dollars.Cannabis helps me sleep better..2 hours a night is better..I cannot eat without it and it is killing me slowly.I nod out on opiates 24/7 and cannto drive any longer.Weather effects me the most.If a low pressure system barrels through..KILL ME!I have a hottub and that helps.I went to PT and all that forever and all it did was make it worse.My Pain Doc wants me to switch to methadone.I want to switch to all cannabis.I am a Homeowner,Taxpayer and have 2 extra smart kids..one is Pre-med with a 4.0 and other has accelerated classes in high school.State reps hear me if you do not bring med pot vote to fruition in Ny your chances of re-election are slim as I am connected and you will face a terrible battle to get re-elected.Do the right thing Rep Skelos and hannon or your career in politics is in jeapordy.Peace and One Love..BigD also if I get cold even on a day when its 90 outside and a breeze hiots my sweaty body,I vomit for hours..It sucks.


I'm sure you already know this but Oxy will cause more problems in the long run so if I was you I would try my best to get off that shit!! I am well aware of pain and how it all works and what is good for one is not good for the other and so on but Oxy,Morphine,Percocet ,Tylenol 3 are bad for people. Although I really hate to tell people what to take drug wise ... I have found this Tremadol 300 mg to 400 really effective and not as many side effects as the others seem to have and I have been on all of them. I actually can't believe when doctors keep prescribing this crap. Getting cold mean poor circulation and always puking could mean H-Pylori ask you doc to check this one way or the other and if he doesn't know what's up ask for a specialist ,Good luck,, headband 707:)
 

bigdaddyc9

Member
Headband-Oxys are robbing me of quality of life.The Pain Docs 1st started me on Fentanyl patches and then Avinza Morphine and now the Oxys.Today a major low moved in a squashed the heat wave..great I hate the heat but low pressure means a day of pain from hell.I am also diabetic.I am thinking of starting to grow again and make RSO and see if it will turn my diabetes around then I can work on the fibro part.Peace and One Love..free the weed for those in need!!
 

justpassnthru

Active member
Veteran
Headband-Oxys are robbing me of quality of life.The Pain Docs 1st started me on Fentanyl patches and then Avinza Morphine and now the Oxys.Today a major low moved in a squashed the heat wave..great I hate the heat but low pressure means a day of pain from hell.I am also diabetic.I am thinking of starting to grow again and make RSO and see if it will turn my diabetes around then I can work on the fibro part.Peace and One Love..free the weed for those in need!!


I've been down that path with similar multiple issues. Taking the rso, may politely surprise you and help with your pain issues. Plus, give you the life back you are slowly leaving behind. :ying: jpt
 

headband 707

Plant whisperer
Veteran
Headband-Oxys are robbing me of quality of life.The Pain Docs 1st started me on Fentanyl patches and then Avinza Morphine and now the Oxys.Today a major low moved in a squashed the heat wave..great I hate the heat but low pressure means a day of pain from hell.I am also diabetic.I am thinking of starting to grow again and make RSO and see if it will turn my diabetes around then I can work on the fibro part.Peace and One Love..free the weed for those in need!!

Yeah Oxy will do this, it's a hideous drug in the long run.. I hope they are not giving you this for FMS pain pills don't work on FMS... One thing your going to want to look into is inflammation.. Your diet will obviously play a large role in what is going on. I was pretty sick from FMS at one point so I found a colon,liver cleans and this seem to help a lot! If you have Diabetic's then your going to want to get on fiber asap. Lots and lots of fiber!!lol....:biggrin: I would also start eating cannabis that also turns out to be amazing

I really hope you do better and find your stride stay frosty headband 707:)
 

cr0n

Active member
ICMag Donor
Veteran
Has anyone experimented with CBD? I was just thinking of getting some CBD crew seeds to see. I was hoping someone may have experience with CBD and fibro.
 
ive heard more sense on the first page of this post about fibromyalgia than in any other place. it tends to be diagnosis of being undiagnosed. my doctor always told me it could be fibromyalgia but i still had to have so many tests to make sure it wasn't anything else, i have started doing small exercises for my core but it gets painful, i find smoking quite a bit helps with being able to focus on the exercise, sometimes it helps to dull the pain i have but most days its more like i feel the pain but it doesn't hurt me its just there as a numbness
 

guy fawkes

Active member
Veteran
ive heard more sense on the first page of this post about fibromyalgia than in any other place. it tends to be diagnosis of being undiagnosed. my doctor always told me it could be fibromyalgia but i still had to have so many tests to make sure it wasn't anything else, i have started doing small exercises for my core but it gets painful, i find smoking quite a bit helps with being able to focus on the exercise, sometimes it helps to dull the pain i have but most days its more like i feel the pain but it doesn't hurt me its just there as a numbness

you ever looked into co enzyme co10mate, i was reading about how protects the hearts and saw a few studies that state its effective for helping with symptoms of fibro.
 

Latest posts

Latest posts

Top