I found a couple members discussing Fibromyalgia in another thread and I’d like to start a new thread dedicated to this often mis-diagnosed terrible disease. I was diagnosed with Fybro in 1996 and have had to deal with the pain and various other symptoms all day and night since. All the prescriptions I have tried have done nothing for me. I tried a CPaP for sleep apnea, what they thought was causing my Fybro. This treatment had no, or very little effect on me.
My physicians, small town Doctors, have thrown up their arms, given up on me. Yet I’m still grasping for anything that will help me.
Wikipedia describes this as:
“ Fibromyalgia (new Latin, fibro-, fibrous tissues, Gk. myo-, muscle, Gk. algos-, pain, meaning muscle and connective tissue pain; also referred to as FM or FMS) is a medical disorder characterized by chronic widespread pain and allodynia, a heightened and painful response to pressure.[1] Fibromyalgia symptoms are not restricted to pain, leading to the use of the alternative term fibromyalgia syndrome for the condition. Other symptoms include debilitating fatigue, sleep disturbance, and joint stiffness. Some patients[2] may also report difficulty with swallowing,[3] bowel and bladder abnormalities,[4] numbness and tingling,[5] and cognitive dysfunction.[6] Fibromyalgia is frequently comorbid with psychiatric conditions such as depression and anxiety and stress-related disorders such as posttraumatic stress disorder.[7][8] Not all people with fibromyalgia experience all associated symptoms.[9] Fibromyalgia is estimated to affect 2–4% of the population,[7] with a female to male incidence ratio of approximately 9:1.[10]
Evidence from research conducted in the last three decades has revealed abnormalities within the central nervous system affecting brain regions that may be linked both to clinical symptoms and research phenomena.[8] These studies show a correlation, but not causation.[11] Some research suggests that alterations in the central nervous system might be the result of childhood stress, or prolonged or severe stress.[8]
Historically, fibromyalgia has been considered either a musculoskeletal disease or neuropsychiatric condition. Although there is as yet no cure for fibromyalgia, some treatments have been demonstrated by controlled clinical trials to be effective in reducing symptoms, including medications, behavioral interventions, patient education, and exercise.[12][13][14][15][16][17] The most recent approach of a diagnosis of fibromyalgia involves pain index and a measure of key symptoms and severity.[18]
Fibromyalgia is considered a controversial diagnosis, due to lacking scientific consensus to its cause.[19] Not all members of the medical community consider fibromyalgia a disease because of a lack of abnormalities on physical examination and the absence of objective diagnostic tests. “
[1-19]*Please refer to the link I provided for the sources of thier information.
I’d like to quote B Friendly and Headband 707 as they had some of the best comments describing this and its effects on them.
B I have to agree with almost everything you said and you certainly put it to words better than I could have or have ever seen. Fybro controls every minute of my life now. Hot tub for me is my only relief. Because of my neck and back surgeries exercise is very difficult for me.
707 many thanks for your post..I have learned to live with Hydrocodone for mine. Was on Oxy for a time but managed to quit it. There are some new drugs on the market, one being Savella but I haven’t tried it. A up of cannabis tea helps me cope with this psychologically but pot does very little to help me with my pain.
I welcome any other personal accounts or stories with this disease. Sufferers comments more than welcome, remedies and prescription reviews gladly accepted. Thank you again Headband 707 and Bfriendly..best wishes and good luck to you both..DD
My physicians, small town Doctors, have thrown up their arms, given up on me. Yet I’m still grasping for anything that will help me.
Wikipedia describes this as:
“ Fibromyalgia (new Latin, fibro-, fibrous tissues, Gk. myo-, muscle, Gk. algos-, pain, meaning muscle and connective tissue pain; also referred to as FM or FMS) is a medical disorder characterized by chronic widespread pain and allodynia, a heightened and painful response to pressure.[1] Fibromyalgia symptoms are not restricted to pain, leading to the use of the alternative term fibromyalgia syndrome for the condition. Other symptoms include debilitating fatigue, sleep disturbance, and joint stiffness. Some patients[2] may also report difficulty with swallowing,[3] bowel and bladder abnormalities,[4] numbness and tingling,[5] and cognitive dysfunction.[6] Fibromyalgia is frequently comorbid with psychiatric conditions such as depression and anxiety and stress-related disorders such as posttraumatic stress disorder.[7][8] Not all people with fibromyalgia experience all associated symptoms.[9] Fibromyalgia is estimated to affect 2–4% of the population,[7] with a female to male incidence ratio of approximately 9:1.[10]
Evidence from research conducted in the last three decades has revealed abnormalities within the central nervous system affecting brain regions that may be linked both to clinical symptoms and research phenomena.[8] These studies show a correlation, but not causation.[11] Some research suggests that alterations in the central nervous system might be the result of childhood stress, or prolonged or severe stress.[8]
Historically, fibromyalgia has been considered either a musculoskeletal disease or neuropsychiatric condition. Although there is as yet no cure for fibromyalgia, some treatments have been demonstrated by controlled clinical trials to be effective in reducing symptoms, including medications, behavioral interventions, patient education, and exercise.[12][13][14][15][16][17] The most recent approach of a diagnosis of fibromyalgia involves pain index and a measure of key symptoms and severity.[18]
Fibromyalgia is considered a controversial diagnosis, due to lacking scientific consensus to its cause.[19] Not all members of the medical community consider fibromyalgia a disease because of a lack of abnormalities on physical examination and the absence of objective diagnostic tests. “
[1-19]*Please refer to the link I provided for the sources of thier information.
I’d like to quote B Friendly and Headband 707 as they had some of the best comments describing this and its effects on them.
B I have to agree with almost everything you said and you certainly put it to words better than I could have or have ever seen. Fybro controls every minute of my life now. Hot tub for me is my only relief. Because of my neck and back surgeries exercise is very difficult for me.
707 many thanks for your post..I have learned to live with Hydrocodone for mine. Was on Oxy for a time but managed to quit it. There are some new drugs on the market, one being Savella but I haven’t tried it. A up of cannabis tea helps me cope with this psychologically but pot does very little to help me with my pain.
I welcome any other personal accounts or stories with this disease. Sufferers comments more than welcome, remedies and prescription reviews gladly accepted. Thank you again Headband 707 and Bfriendly..best wishes and good luck to you both..DD
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peace out Headband707
