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Old 07-09-2019, 05:51 PM #201
CosmicGiggle
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Wishing all the best to Gry, hang in there!
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Old 07-09-2019, 08:48 PM #202
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I've got to run into town, as a project was completed, and I need to get it moved to another place; hurry, hurry, hurry.

In the whirl of things, I missed a call from Gry; he reported he had just received a call from the Health Dept, and his culture is not one of typical TB, but (perhaps?) a similar strain of something different, and there may be a genetic component.

He said they wanted him into their office ASAP, though still maintaining the other appointment with the Doc on Thursday. Presented to him as a good news-bad news affair. They stated that it's not a classic case of TB, and didn't culture out that way, but that what they -think- it is can move much faster, and is potentially interactive (?) with the cancer.

So he's on the bus shortly, per his message, and headed in to see them for further testing.

How life works sometimes; sit, wait, fret, then hustle, hustle, hustle.

I'll call him back as I head into town, after taking care of pups. Maybe in all of this there's a resulting answer or 2. Hopefully with some positive outlook.

More later, I'm sure.
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Old 07-10-2019, 12:32 AM #203
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Quote:
Originally Posted by moose eater View Post
I've got to run into town, as a project was completed, and I need to get it moved to another place; hurry, hurry, hurry.

In the whirl of things, I missed a call from Gry; he reported he had just received a call from the Health Dept, and his culture is not one of typical TB, but (perhaps?) a similar strain of something different, and there may be a genetic component.

He said they wanted him into their office ASAP, though still maintaining the other appointment with the Doc on Thursday. Presented to him as a good news-bad news affair. They stated that it's not a classic case of TB, and didn't culture out that way, but that what they -think- it is can move much faster, and is potentially interactive (?) with the cancer.

So he's on the bus shortly, per his message, and headed in to see them for further testing.

How life works sometimes; sit, wait, fret, then hustle, hustle, hustle.

I'll call him back as I head into town, after taking care of pups. Maybe in all of this there's a resulting answer or 2. Hopefully with some positive outlook.

More later, I'm sure.
thanks for the update, that sounds wild. best of luck
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Old 07-10-2019, 04:08 AM #204
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I spoke with Gry as I was driving into town to move my boat from one place to another.

He was still in bed, trying to beat away a serious bout of incontinence, and intending to do what ever he could to make himself able to get on the bus.

The crunch of needing to get some place, and the body having other plans. He knew the importance of getting to where he needed to be for follow-up, and was intending to call the clinic, and speak with the nurse/whom ever there, and see if there was anything they could recommend that would make him better able to get mobile.

He had some less than conventional methods to contend with the immediate circumstances, but there were ripple effects that might compromise his standing in seeking help.

Curve balls a'plenty, it seems.
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Old 07-10-2019, 04:59 AM #205
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Just checking in to say my thoughts are still with ya gry, hope things swing up.

Not sure where you are located, but some mass transit systems will send out a short bus (lol) to get folks that are not able to get to main systems for health or distance reasons.
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Old 07-11-2019, 08:34 AM #206
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Was able to see a specialist today. Told me they are sure about the cancer, but unsure if it is TB, or something else called MAC (https://rarediseases.info.nih.gov/di...lex-infections)

Have to go back tomorrow for additional testing, and have an appointment with the same specialist for a week from today at which time I hope hear more precisely what the testing shows. Would be more than pleased if is
still small enough to be removed by surgery.

While I was at the health dept, my primary health care provider (LA Cares) called to cancel Monday's appointment.

Fourth time they have turned me away in the past 2 months.
Was shown today's Xray beside the one taken 2 weeks ago while I was
in the hospital. Difference was readily discernible, it not growing slowing.
I contemplated how much damage had taken place by allowing 2 months
to slip by with no treatment.
Couldn't help but ask what was the logic behind their cancellation this time, and was told it was the health dept has a hold on me.
All I could think of was the difference between the two xrays, and ponder how much larger it had become in the two months that had gone by.
I explained that I was at the health dept and had just spoken with the Dr about Monday's appointment, he wanted me to keep it.
Said I would ask my contact person at the health dept to call her to clarify the matter.

Can't help but be impressed by the county health dept.
Old government offices built in the fifties, old equipment and gear.
Underfunded, and overstretched, still quietly delivering solid healthcare.
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Old 07-11-2019, 08:49 AM #207
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I hope it's small and they can take it out too.
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Old 07-11-2019, 09:42 AM #208
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Quote:
Originally Posted by Gry View Post
Was able to see a specialist today. Told me they are sure about the cancer, but unsure if it is TB, or something else called MAC (https://rarediseases.info.nih.gov/di...lex-infections)

Have to go back tomorrow for additional testing, and have an appointment with the same specialist for a week from today at which time I hope hear more precisely what the testing shows. Would be more than pleased if is
still small enough to be removed by surgery.

While I was at the health dept, my primary health care provider (LA Cares) called to cancel Monday's appointment.

Fourth time they have turned me away in the past 2 months.
Was shown today's Xray beside the one taken 2 weeks ago while I was
in the hospital. Difference was readily discernible, it not growing slowing.
I contemplated how much damage had taken place by allowing 2 months
to slip by with no treatment.
Couldn't help but ask what was the logic behind their cancellation this time, and was told it was the health dept has a hold on me.
All I could think of was the difference between the two xrays, and ponder how much larger it had become in the two months that had gone by.
I explained that I was at the health dept and had just spoken with the Dr about Monday's appointment, he wanted me to keep it.
Said I would ask my contact person at the health dept to call her to clarify the matter.

Can't help but be impressed by the county health dept.
Old government offices built in the fifties, old equipment and gear.
Underfunded, and overstretched, still quietly delivering solid healthcare.
Wishing you good luck Gry with the future and praying it all comes good in time and following along in the background
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Old 07-11-2019, 11:00 AM #209
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Wishing you the best of outcomes and a speedy recovery Gry.
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Old 07-12-2019, 05:27 AM #210
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So it's not cancer,, or am I reading things wrong with hopefull thought and only reading what I want to see
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