Constant Migraine Aura

[Tripsick]

Constant Migraine Aura

You can Call them Silent Mirgraines because some times there is no Pain.. Or Ocular Migraines
I get two kind of pain Back of head and or Like my Eyes are being torn out..

So they have been trying to fix some peripheral neuropathy with these IVIG treatments... Well after my last one 1800ml of liquid infused into my blood... i now have constant migraine aura's that havent gone away in 7 days.
I had a CTA on my blood vessels in my neck and they came back normal..
They tried MaxiSalt and that gave me the worse anexity attack of my life... i had to go to the ER and they had to sedate me...
still having auras nothing has helped.
I take a handful of opiates a day for pain. My thyroid is failing do to Hashimotos...and i have a few other issues i would rather not go into...

Anyone else have constant migraine aura's? (imagine never leaving a acid trip and all you see is bright lights and gray swirling disc... that orbit each other... Eyes open or close Bright room or Dark....(welcome to hell) Exercise aka getting my heart rate really up breathing heavy... makes no difference... as soon as i wake up from a deep sleep they are still there.

Did anyone find relief?

I have tried a list of medications nothing so far.
another Neurologist appointment on Friday and then with the guy that started the infusions on me this Thursday.

 

[HandsomeVulture]

I don't have a constant aura, but Ocular Migraines are the type I get every now and then depending on how stressed I am. Once I start seeing floating discs or auras, I know I have about 10-15 minutes to get near a toilet because the pain makes me incredibly nauseous. I wish I could help, but I've found that there's really nothing I've found that makes the auras go away. Weed helps pain and can knock me out, but doesn't really address the problem.

 

[Tripsick]

yeah i have smoked many strains and had a few edibles but so far nothing.
Tried some migraine meds and nothing Benzos in large doses nothing.. just going to have to make it to the next appointment i guess.

 

[BagseedSamurai]

I know it may seem like an odd question, but how is your water intake? I mean a glass of pure h2o.

 

[Tripsick]

i drink lots of water at least 64 oz a day

 

[BagseedSamurai]

Alright. I ask because with migraines it sometimes has a lot to do with the hydration levels and the balance of water to chemicals in your body.

 

[Cush]

I used to get them really bad. My doctor gives me cortisone injections in the back of my neck which helps for several months at a time.

 

[Tripsick]

Irony... Im truly Trip Sick.. Kaleidoscope eyes for 8 days straight or i think anyways
and i feel like i got my monies worth.. too bad these are just gray disc and bright strobe lights..

 

[Tripsick]

well I'm pushing 25 days straight of auras... MRI, MRV, CTA,.. nothing
tomorrow MRA of head and neck..

My neck became so sore it felt like the source of the problem... i went to my doc and he did a small adjustment and then gave me two trigger point injections "Steroids and some numbing agent"... at the base of my skull and nothing. it may of made my neck feel better for a second but that's about it. So i wonder if i'm breaking some type of record with the auras.. i'm assuming they are going to stick around awhile.

 

[Marywanna]

Trip,my friend has the same kind of migraines you do. She is in her 50s and very healthy otherwise. I will ask her about her meds. I know that she has had 4 epidurals in her neck,she goes to the same Pain Mgt Dr I go to. She said they helped. I get concerned for her because she said she sometimes passes out before the pain comes. But always the aura first and like you, she says it is like an acid trip, her vision breaks things up into mosaics.I had them from age 12 to 47. Then they just went away. Mine were the kind that made me puke for hours and stay in bed for 2 days,I always used mj for the constant nausea. Just before they would come,I would get a strange sensation at the base of my skull.........and I knew it was coming. I never tried that Imitrex stuff because blood pressure problems.