Announcement

Collapse
No announcement yet.

Anyone 'cured' prostate cancer with....

Collapse
This topic is closed.
X
This is a sticky topic.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Originally posted by tobedetermined View Post
    Good luck going forward. I am recuperating from a week old slice & dice myself, so I can directly commiserate.

    Some blueberry bubble hash I made a month ago is my morning to bedtime friend at the moment.
    Thanks. Yep, waiting for the calendar to flip pages, and the body to do what it needs to, but not being ablee to see the progress leaves lots of room to guess what is causing which twinges.

    The NP said no supplements, CBD, THC extract, etc., for a week. The surgeon was impressed with the readiness with which my skin bleeds, & for now I'm attributing the elasticity and ample blood supply to all of the above beneficials.

    I could take walks (which I need to do anyway) but I'm tethered to a catheter & a wound drainage bulb, so, thus far, hourly walks around the room we're in is a lot easier (and safer) than changing out my night-time catheter bag for a leg bag. It's taught me greater empathy for those who live this way (or with more appendages than I have) for the rest of their lives. The humility of aging and disability.

    I hope you heal well from your medical adventures.

    I received numerous notes of support today & last night, via email, from long-ago surrogate Canadian 'family' from the alternative school in the Yukon Territory. Lots of cause for tears of appreciation, re. good folks from long ago and far away. But I'm already burned out on lying on my back in a bed. Looking forward to this phase being in the rear-view, what ever the next move might be.

    Thanks again for your kindness..

    Comment


      Originally posted by Weezard View Post
      The day after is usually roughest.
      I had to fly back from Oahu to the Big Island the next morning.
      By the time I got here I was bleeding into the cath bag.
      Carried the P-bag around in a cloth shopping bag for a while as my urethra healed.
      When they pull the cath, they inject sterile water directly up your bladder.
      If they get back as much as they put in, it's clear, and you can start and stop the stream, you will be good to go, or not "go", your choice.
      And don't panic on the reptile dysfunction. That can take months to improve.
      Full recovery actually takes about 6 months, but you should be mostly functional in less than 30 days.
      What helped most was my dog.
      She looked so worried that I had to recuperate, yah?

      When the lab report arrives; Think negative. Negative margins.
      Perineural invasion and positive margins told me that a recurrence was likely.
      Took about 14 months to recur and the doubling rate was alarming
      I was looking at a 6 year span.
      Started graphing the growth rate, then read about RSO.
      Started with a "grain of rice" size
      and my doubling rate slowed to about 18 months.
      Started ramping up the dosage going for a gram per day. that was difficult.
      At high dosage ~750 mg. the doubling rate worsened to about 12 months!
      That's when I realized that super high dosage was counter productive. Dropped it a fraction for each blood test.
      Am taking ~ 140 mg. now and the D. R. has climbed to 2.5 years.
      Means cancer is no longer an issue for me.

      A friend of mine has recently presented with lung cancer.
      She has run out of chemo options so I'm sending her some oil.
      Will keep y'all posted on her progress.
      Thanks, Weez.

      Biggest hassle with the cath bag is running tubing, and timing the next rest room available to drain it.... during COVID, when lots of places limit access to restrooms.

      Hoping the recovery goes as smoothly as the surgery seems to have.

      I miss my pups, but my youngest son is tending them, the house, and bedding/veggie starts until we return.

      Lyft driver from the hospital to the room we're in seemed to hit every bump, and inertia in cornering sent my guts who-knows-where. I want to be home SOON.

      We'll be plotting PSA changes. I'll be doing a THC-A extraction when I get back home, which I recall your planning to use as an alternative, as well.

      Hope your friend's recovery goes well.

      Where we're staying is a place primarily for cancer patients & their families. Fist day here, a vibrant young woman in a colorful head scarf, with no hair (chemo) rolled out of the elevator, life beaming in her eyes, and driving her wheel chair like she was Mario Andretti. There are some brave and vibrant folks here who've chosen to fight hard for their lives, but still smiling broadly. That, too, has been humbling. Getting taught things by folks I've never met.

      BTW, surgery was EARLY Tuesday A.M. I'm plotting the hours of recovery now, envisioning the healing process that is, for now, invisible.

      Thanks again.

      Comment


        Glad this procedure is behind you moose, and good wishes to all getting sliced and diced. my computer ran out of battery yesterday but i was sending all the good juju i can muster. still am. wonderful to hear about the silver lining of meeting a like soul and connecting.
        weezard i hear you on recuperating for the dog. mine frets on me in the morning if ive slept past dawn.
        much aloha to all and its really nice to see all the love.

        Comment


          Rest up, moose eater . I'm going to celebrate your survival with a trip to the coast and I am taking rods and reels. I will salute the sunrise for you @ 7:11A EDT. Leaving in 3...2...1....


          “You can disagree without being disagreeable.”
          Ruth Bader Ginsburg

          Comment


            Originally posted by moose eater View Post
            I hope you heal well from your medical adventures.
            Thank you. This was ‘only’ a lumbar decompression. So another scar in my lower back, beside the one from 3 years ago. The creeping scrooge of stenosis, but it ain’t creeping as slowly as I’d like.

            My prostate scare came 20 years ago. I had the core sample test - which was the only time I have ever fainted btw – because my poor miss-aligned brother was diagnosed with aggressive PC. He fought it fiercely – on top of HIV - for 10 years, but it eventually won.

            Originally posted by moose eater View Post
            The humility of aging and disability.
            Now, we REALLY understand how easy it is to become that ranting angry old man who lives next door.


            In the tent now: Is it Time for Show & Tell?
            Arguing on the net is like yelling in space.

            Comment


              you're gonna be fine.
              you're already sounding better.

              https://www.youtube.com/watch?v=mdZB8NM0szI
              "when i run outta weed, i smoke match sticks...
              that first hit is FIRE!!!"


              "I'm not always a dick...but when I am, I drink cheap beer".

              Comment


                A big thank you to all. Very heart warming to read your thoughts. Seriously.

                I hadn't felt up to replying earlier today, and had neglected the musical 'gifts' (btw, trich, thanks for the very nice blues/R&B; good stuff, and hope to embody the sentiments.

                Thank you, buzz. Hope fishing was good. Salutes at sun-up; positive images.

                Cudme & tobedetermined; yep, there's been some good folks post here, and you're both among them.

                Today was a 2-steps-back kinda' day; pieces of info that got blurred, causing some frustration already set in motion by 3 (out of 3) businesses I had transactions pending with, failed to update the status (to varying degrees of success/failure), inaccurate info in my medical charts (not at ALL uncommon; most folks who view their med charts in detail, find all KINDS of erroneous crap in them), all added up to doing others' responsibilities when I feel ill-equipped (energy-wise), and currently have an even lower (than normal) tolerance for incompetence & bullshit.

                Innards are still quite sensitive but (overall) improved. Getting up in bed doesn't 'undo' me the way it had.

                However, when I drink as little as 11.5 oz. of protein shake or H2O, the (hopefully just strained) diaphragm in the area near/between my stomach and heart gets a mildly pained and chilled sensation. I've successfully had 3 bowel movements between yesterday (1) and today (2), and have been eating stool softeners to make THAT happen. But the stools are much darker than before surgery, which has me concerned, as my blood count had been dropping at variable rates for the last 4 blood draws before they discharged me, and I'm well aware of what this COULD mean (I've got little interest in going back into surgery at this time; understandably, I suspect).

                So we're monitoring the symptoms, and crossing fingers that there's other explanations offering more benign causes.

                Bliss, this is not, but hoping for green grass & high tides down the road, in the near future.

                Trying to not go back in to see any Docs until next Tuesday, when we're tentatively scheduled to remove my catheter and drain tube, with the position of the drain tube being ONE of the possible, more benign explanations for the diaphragm phenomenon.

                So I'm biding my time, being a grumpy arse, and waiting until next week, when we hopefully yank tubes, and a forum member has mentioned getting me down to the Arboretum, to see the cherry blossoms, and walk in the grass, or something other than urban concrete.

                Things at home are reportedly going well, with all 3 pups finally abandoning waiting by the front door for us, and instead sleeping in my younger son's room, though still waiting 'til late to get there.

                My plants that will provide ongoing future extract meds are getting healthy in my absence with just H2O (better mix), but will be right AT ready for 5-gallon pots immediately after our return, among other tasks, including an immediate THC-A extraction.

                I'd do more pain control than I am, for both sleep & pain, but this is the wrong surgery to induce constipation with. So I'm taking ONE 500 mg acetaminophen every 6 hours now (my mother died from an OD of the stuff; they'd had me on 4,000 mg/day of that shit, but I feel rather protective of my liver and kidneys), I ABSOLUTELY won't eat 600 - 800 mg Ibuprofen (I'm fond of my stomach lining & may have some continued internal bleeding), and am taking ONE light-weight 5 mg Oxycodone at night, though may or may not tonight.

                That's a rather thorough report.

                Thanks again, all of you, for the kind thoughts & words. Tomorrow may be more positive...

                ---------------------------------------------------------------------------------------------

                Marvin Gaye, Live in Belgium, 1981

                https://www.youtube.com/watch?v=SymakbzeKsA

                Comment


                  - Good to know that you made it thru the procedure without complications so far moose - its just a case of rest and recuperation now I suppose - so hopefully not such a long time - before you are allowed to go home -
                  'It can all start from a seed'

                  Comment


                    The sunrise yesterday seems to have matched your 2 steps back day. It was less than glorious.
                    Click image for larger version

Name:	P4162117.JPG
Views:	37
Size:	120.5 KB
ID:	17834601
                    The sun tried to make the scene but only briefly.
                    Click image for larger version

Name:	P4162118.JPG
Views:	35
Size:	82.0 KB
ID:	17834602
                    I fished a lot more than I caught. This little bonnethead shark was fun and he tested the drag for me. I won. I released but I did not kiss him on the lips.
                    Click image for larger version

Name:	P4162119.JPG
Views:	35
Size:	182.7 KB
ID:	17834603
                    Click image for larger version

Name:	P4162120.JPG
Views:	36
Size:	196.6 KB
ID:	17834604
                    The storms forecast to arrive after 2PM took the express route and arrived before 10AM with the rumble of thunder. Thunder on the beach is not a good thing.
                    Click image for larger version

Name:	P4162121.JPG
Views:	37
Size:	95.6 KB
ID:	17834605
                    Today is that tomorrow with the positivity attached. I hope so.
                    “You can disagree without being disagreeable.”
                    Ruth Bader Ginsburg

                    Comment



                      moose eater, good to hear you´re doing okay. Not all nurses are great but it sounds like you´re in luck. I hope the treatment you´re getting will be successful.

                      Comment


                        Originally posted by Gypsy Nirvana View Post
                        - Good to know that you made it thru the procedure without complications so far moose - its just a case of rest and recuperation now I suppose - so hopefully not such a long time - before you are allowed to go home -
                        Thanks, Gypsy.

                        Yes, we're past the more acute risks of anesthetic OD or related reactions, still monitoring symptoms for what might be internal bleeding (size small? But with a improvement late last night to color and thus less indicative of internal bleeding), and the effluent from the surgical drain/bulb is a bit thinner, with less medium, bright red to it; trying to go deep pink, but taking its time.

                        Catheter output has us mildly concerned at times, including this AM, and we were forewarned that if evidence of ceasing of spontaneous flow arises, even if only for a several hour period, to head straight to the ER.

                        It's often what we can't see with our eyes, which leaves us guessing in a somewhat informed manner, that carries what ever level of anxiety with it. Probably a good time to practice being a bit more Zen about the whole thing.

                        Thanks again, and trust all's well.
                        -------------------------------------------------------------------------------------------------------

                        Ben Harper & Eddie Vedder, Live acoustic, Australia

                        https://www.youtube.com/watch?v=CrP_j3J_msY

                        Comment


                          Originally posted by buzzmobile View Post
                          The sunrise yesterday seems to have matched your 2 steps back day. It was less than glorious.
                          Click image for larger version  Name:	P4162117.JPG Views:	7 Size:	120.5 KB ID:	17834601
                          The sun tried to make the scene but only briefly.
                          Click image for larger version  Name:	P4162118.JPG Views:	7 Size:	82.0 KB ID:	17834602
                          I fished a lot more than I caught. This little bonnethead shark was fun and he tested the drag for me. I won. I released but I did not kiss him on the lips.
                          Click image for larger version  Name:	P4162119.JPG Views:	7 Size:	182.7 KB ID:	17834603
                          Click image for larger version  Name:	P4162120.JPG Views:	7 Size:	196.6 KB ID:	17834604
                          The storms forecast to arrive after 2PM took the express route and arrived before 10AM with the rumble of thunder. Thunder on the beach is not a good thing.
                          Click image for larger version  Name:	P4162121.JPG Views:	7 Size:	95.6 KB ID:	17834605
                          Today is that tomorrow with the positivity attached. I hope so.
                          Thank you, buzz.

                          Catching something is usually better than limp lines. Glad you had a day on the water, and some fun doing it.

                          In my early or mid-20s, on my birthday, I put my old traveling partner, my Norwegian Elkhound, Missy, in the forward hole of a 2-person soft-skin kayak, loaded up a variety of firearms, beer, and grub, put a stack of wool blankies under the pup so she could see better w/o standing up, ate about a 1/4-oz. of shrooms, and headed from Pig Island on the Tanana River, near Fairbanks, down to Nenana, leaving about midnite. Made record time; envisioned my arms and paddles as the rams and wheel on an old stern-wheeler. Five hours or so later, I was one bend above the Village of Nenana, and finally stopped at a sand bar, as I was now not high enough to worry excessively about puncturing the skin of the boat on unseen concerns n the silty water, but was still high enough I didn't need to be stopping in the middle of the Village... and my ride home was still hours away.

                          But earlier that night, not long after departure, I encountered a lightning storm. I had a patch kit for the boat, but was high enough, and paranoid enough, that the unseen sweepers and such stopped me from stopping, as stated before.

                          I knew was a greater target for the lightning out on the water, and was weighing the (non-risks) in my very high mind, when the lightning storm literally seemed to break into 2, and went around me to either side. I felt like I was Moses, dealing with the Red Sea. That came back to me, re. your fishing on the beach with thunder.

                          Glad you had a good day, even if cloudy, and with less-than-delectable critters on the line. "It was a day."

                          -----------------------------------------------------------------------------------------------------------

                          Ben Harper, Live Collection, 1997 to 2012

                          Excuse Me Mister/Burnin' & Lootin'

                          ​​​​​​https://www.youtube.com/watch?v=XpQ35RiB550

                          Comment


                            Originally posted by Cuddles View Post
                            moose eater, good to hear you´re doing okay. Not all nurses are great but it sounds like you´re in luck. I hope the treatment you´re getting will be successful.
                            Thank you, cuddles. Yes, cuddles are good; touch and care can contribute to the healing the body struggles with if all alone. (*Read your avatar more closely; good stuff).

                            Yes, though some nurses were more random than others, I was graced with some extremely caring and patient persons, despite their being under-staffed. COVID has pinched medical care in ways many aren't aware, in many ways.

                            One nurse in particular, I need to see if I can get some sort of personal commendation placed into her personnel file. She earned it and then some, seemingly by just being who she is, likely beyond some of her own life trials that cast her into who she came to be. A strikingly beautiful soul. She and the recovery nurse I had in Anchorage after a triple laminectomy 3 years ago this coming June, defy accurate words in re. to their glow and humanity. Angels, both of them.

                            Thank you for your kindness.

                            -----------------------------------------------------------------------------------------------------------------

                            Ben Harper, Live

                            'Diamonds on the Inside'

                            https://www.youtube.com/watch?v=z7y7Cl_PBGk
                            Last edited by moose eater; 04-17-2021, 16:17.

                            Comment


                              That is a wild story moose. I love being on dark water in a kayak. some of the deepest thrills. maybe ill go hit that ocean...
                              i bet your dog had a blast too. mine doesnt like ocean. tried a few times and then she would hide when i was ready for launch....haha

                              Comment


                                Originally posted by cudme View Post
                                That is a wild story moose. I love being on dark water in a kayak. some of the deepest thrills. maybe ill go hit that ocean...
                                i bet your dog had a blast too. mine doesnt like ocean. tried a few times and then she would hide when i was ready for launch....haha
                                Thanks, cudme.

                                Dark water on the ocean or lakes, in proper depth, has typically been a positive mystery for me. "What's down there for positive surprises?"

                                In river water, with the current taking you where it wants sometimes, what has been a non-threatening thing for me on Big Water, becomes more of unseen threats. A faster river can pin a boat to sleepers, visible or not, and the current can then capsize the boat. Bad news we've seen before, even with river boats.

                                The Tanana, at its fastest, flows just under 3 mph. Not too fast, but remembering the water weighs 8 lb./gallon, there's a LOT of it flowing, even if only at that pace, and can pin a boat sideways to an obstruction, and slowly or quickly roll the bugger over. Things I learned over time.

                                Missy, in her youth, in the Upper Peninsula of Michigan, out on Lake Independence, hopped over the gunwale of an aluminum canoe we were in, back about 1976, apparently unable to discern the H2O from land, and immediately completely submerged just beneath the surface. I grabbed her collar, and , lifted her back into the boat. That was her early learning lesson with being in craft on water. Best way to learn a lesson (for both of us); scare the shit out of yourself, but live to laugh about it.

                                Yep, I was a water baby. She learned to be one.. later on.

                                I lost her on Christmas Day in Fireside, British Columbia, in the early 1980s. Broke my heart. Ate speed for 3 days cruising up and down that stretch, but never found her. Friends in the area shared third-party reports of sightings over the next couple years, and I would stop in that area on the road, hike up Coal River with a shotgun, and other rivers or streams, but never found her. I hoped she found peace, or passed without too much agony, ate some peyote, lit some Navajo candles, and tried to find her in the ether. That's another story; lots of interpretations.

                                Thanks again, and good luck with your pup and the kayak. Both offer good meditation potential.

                                -------------------------------------------------------------------------------------------------------------------------------------------

                                Ben Harper, Live on Letterman

                                'I Will Not Be Broken'

                                https://www.youtube.com/watch?v=Y0AxsEY50cw

                                Comment

                                Working...
                                X