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  • buzzmobile
    replied
    Originally posted by moose eater View Post
    It did not instill faith that my driver knew where the car was headed, or what to do when we got there, and, especially, why.
    Yeah, but was the driving making good time?

    After treatment ended I took on some projects to "prove to myself" I could still function. My father in law died during that time and his house needed repairs and paint and all the little things that need doing to sell an empty house. I got it done.

    Once you enter the medical portal you'll more than likely be inundated with Cancer Society literature. I gathered all of that stuff and circular filed it. I did not ask to join their club. I am not their disease.

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  • Guest's Avatar
    Guest replied
    Trying to recall what I remembered about 'fermented soy products = good' versus 'non-fermented soy products = bad,' and this article came through. I noted it's 2014, so not fresh, and not too ancient.

    There are links in the article to various studies or supporting sources.

    https://www.mdanderson.org/publicati...8-1589046.html

    Not all bad news, necessarily, and not as cut-and-dried as I remembered.

    Edit: of note in the article, is that TVP (textured vegetable protein) is reported to be beneficial (indirectly, at least, where dietary fiber intake effects health and relation to some types of cancer) with some cancers, and not helpful with others.

    -----------------------------------------------------

    Radio-oncologist has some records that are not accurate, and I need to send a third message to correct some Rx med and other errors, as well as what appears to be inaccurate info from local labs.

    Also, in the past, working with Docs with whom I've had a relationship, when I have asked for some tings to be off the record, there's been agreements. I'd asked this fellow not to make a formal mention in records of the cannabis extract therapy (specifically referencing THC-a), and apparently liability awareness reigns pretty heavily these days, as there's now a formal mention of that in my formal records, and the data base is a shared portal.... so.... GREAT!! <Not>

    What's the world coming to, when ....
    Last edited by moose eater; 01-24-2021, 08:40.

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  • Guest's Avatar
    Guest replied
    Weez, if you would, another point of clarification.

    Had some communication today with another cancer patient who has faced far more trials than myself. We discussed the extract/oil dosage you'd described.

    I'd arrived at the conclusion(?) that you are doing a dropper of CBD oil in the AM, another at PM, and a dose of 140-ish mg of THC extract PM only. Did I miss something?

    ---------------------------------------------------------

    I sent an email to the CBD hemp source, inquiring specifically re. herbicides, pesticides, etc. whether in soil or on plants, bagged wet or dry, etc., etc.

    I informed them that I have been making extract, and was intending to first test it at a canna lab, to make sure it's below .3% THC, then, if it is legal, by virtue of low THC, for another (not canna-related)_lab to process, intending to take it to a mass spectrometry lab for a thorough run-down on ANY nastiness, residual or otherwise.

    I'll see what the say. My gut instinct is they'll say there's nothing questionable there, (and that may well be true), but it sure seems to give me a jolt, when it should be a calming thing.

    If it comes back relatively clean, I'll try the process with ethanol as a substitute.

    Otherwise, if an independent lab identifies some form of residual neem presence, or something that might not affect others negatively, but clearly does so for me, then I'll have the remaining majority of about 3.5 lbs. of some CBD hemp that I can't use, but maybe someone else can.

    That's the plan for that issue. And maybe someone will score some cheap or free, properly stored CBD hemp, in decent quantity.. or not.

    Thanks.

    ----------------------------------------------------------------------------

    Edit: Just had a number of Tofurkey brand Beer Brats, and other plant-based sausages brought home to me. Gotta' say the Tofurkey Beer Brats are far less offensive than some I've sampled recently; still not quite really good, more tolerable and repeatable, for now. But arms and heads above some. The choriso ('Soyriso') is a textured veggie protein soy product, and I'll have to read further on-line to find out if they ferment the soy or use it straight. If it's not fermented, then those won't be making a repeat performance here, no matter how tasty they are.
    Last edited by moose eater; 01-24-2021, 02:14.

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  • Guest's Avatar
    Guest replied
    Originally posted by trichrider View Post
    https://www.youtube.com/watch?v=L__jruvYuCg


    [youtubeif]L__jruvYuCg[/youtubeif]


    my tastes have morphed lately into most anything without lyrics.

    ...except for the weekends when i listen to Blues...here:


    https://www.knkx.org/term/blues


    6pm to midnight saturdays and sundays. hardly any interruptions, almost like FM radio used to be.


    you do know that potassium comes in a supplement right?
    Thanks, trich.

    Yes, potassium comes in capsule and/or pill form, but despite the recommended daily intake, ranging from 3500 to 4700 mg per day, depending on the source of info, because it's also a dangerous supplement when ingested to excess (it's a part of the lethal injection and oral medication concoctions), so they limit the supplements to 99mg/dose, despite the significant amounts recommended in a day.

    Go figger'.

    Anyway, I figured I need to try and stabilize what appears to be a free-fall on the digital scale lately, and start finding methods to try and make the stuff I now subsist on, be more presentable, desirable, tasty, and healthy, all at the same time, though the chili powder of scarce amount that I added to the guacamole is technically suspect where my current PC is concerned.

    I believe they see hot peppers and night-shade in general as irritating to the area, if not toxic.. But it's not meat protein.

    Thanks for the tunes.

    I'll give them a 'go shortly.

    Edit: I ate a modest dose in a capsule of my THC (not THCa, but THC) extract earlier today, with no obvious negatives, and between that, and a half of a 35mg tab of Hydroxyzine, most stressors parked curb-side and took a walk to the park. So, shortly, after moseying a bit, I'm on to chores; laundry to finish folding, and soilless mix to take another stab at.

    'Nuther edit: Found Otis Taylor studio session at your blues site. A fan of his for bit. Good stuff.

    --------------------------------------------

    Bruce Cockburn

    'Foxglove'

    A 1.5 minute instrumental from the 1st cut off his Night Vision Lp, somewhat reminiscent of Leo Kotke.

    https://www.youtube.com/watch?v=Tgdar1NwMJ4
    Last edited by moose eater; 01-24-2021, 00:06.

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  • trichrider
    replied
    https://www.youtube.com/watch?v=L__jruvYuCg


    [youtubeif]L__jruvYuCg[/youtubeif]


    my tastes have morphed lately into most anything without lyrics.

    ...except for the weekends when i listen to Blues...here:


    https://www.knkx.org/term/blues


    6pm to midnight saturdays and sundays. hardly any interruptions, almost like FM radio used to be.


    you do know that potassium comes in a supplement right?

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Thorough confirmation of the meeting's information from the other day with radio oncologist, and questions that weren't asked but should've been, sent through the portal I use to communicate with the team in reference.

    Picked up a bag of Bob's Red Mill Almond Flour the the day; less than 1/4 the carbs of our other flours, from what I could read, but MAN (!!), paid about $23/bag for a 2-lb. bag. Being able to eat semi-normal (for my past routine) diet, including the occasional smaller sandwich, at this time of weight-loss, might be nothing shy of excellent.

    Working the map to get back on track.

    Possible THCa extraction today, maybe try and get outside to drop some trees on the lower end of the property, if the energy's there, and new batches of soilless mix to put together.

    The girls are doing what they've done before when they were neglected by life's stressors, recovering a good bit, and greening up, but I'm still a week or 3 from even being close to taking sufficient cuts from select moms.

    For what I have here, and considering which of them might be best suited to the cannabinoid array I THINK I need from what I have, I'm leaning toward either a White Lotus, or Goji OG, or maybe a Satori. Those, or a somewhat unstable Space Cake, are likely the most sedate strains I have, and some of them are regarded as 'in-betweeners' by me.

    Thoughts on which of those is likely best suited?

    ------------------------------------------------------

    John Mayer

    2010 Crossroads Guitar Festival

    Covering the classic 'Ain't No Sunshine'

    https://www.youtube.com/watch?v=3ZyxyehN_Qk

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  • Guest's Avatar
    Guest replied
    Originally posted by buzzmobile View Post
    I see my Health Plan PCP every 6 months for routine blood work and a yearly PSA number. I see my VA PCP once a year for same. The VA doc wanted me to do a Cologuard test as it can detect cancer DNA as well as blood.

    I choose blissful ignorance when it comes to monitoring for potential recurrence. I burned up a lot of my worries with radiation I suppose.
    Thanks buzz.

    I think lots of persons get to a point, from what I've heard and read, where they simply stop fighting any 'maybes', and some stop fighting in general, and get on with life without a hospital scheduling book running the show.

    An acquaintance from the Yukon Territory, who lived through one of the earliest, if not the first case of COVID in Canada (he's now in BC, having left the Yukon Territory), has been battling 2 types of cancer (while beating C-19), beat the other, but the one remaining has spread.

    A person overseas in a distant place makes concoctions for him to help live with the symptoms of his condition, I assume mainly the pain or discomfort, and perhaps nausea.

    He's decided to stop wasting remaining time, and he rides his bicycle and paddles his kayak, and is focused now on maximizing his time with loved ones and living the way he loves.

    But that's a point or line that I think every person reaches differently.

    Some say he's brave or courageous, and I'm sure there's some who know to keep their opinions to themselves, who view his path as a long, slow suicide.

    I understand what he's doing. He's older than I am, has a pretty impressive and amazing past, and each person owns their own path and destiny, if permitted, in my view of things.

    Thanks again.

    I'd add that one eye-opener was when the guy who offered me dismal numbers in Los Anchorage, was asked about the causes of cancer (my cancer, particularly), the spread, and why, the causes, and why, his response was that there's a lot they don't yet know about these things.

    It frankly reminded me, to a lesser degree, of shrinks I worked with in mh, saying that they weren't sure why some of the meds they prescribed did one thing for some, and something else for others. But they kept on writing them.

    It did not instill faith that my driver knew where the car was headed, or what to do when we got there, and, especially, why.

    ------------------------

    Buddy Guy, Ron Wood, and Johnny Laing

    2010 Crossroads Guitar Festival

    '5 Long Years'

    https://music.youtube.com/watch?v=de...MVMI1SQR4FnRoc

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  • buzzmobile
    replied
    I assume you get tested for cancers of various forms on a regular basis, buzz?... Not just PC, but other related cancers?

    My best guess is that for other cancers, there's other markers tested for, or a rise in white blood cell counts, or ????
    I see my Health Plan PCP every 6 months for routine blood work and a yearly PSA number. I see my VA PCP once a year for same. The VA doc wanted me to do a Cologuard test as it can detect cancer DNA as well as blood.

    I choose blissful ignorance when it comes to monitoring for potential recurrence. I burned up a lot of my worries with radiation I suppose.

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  • Guest's Avatar
    Guest replied
    Originally posted by buzzmobile View Post
    I spent 10 minutes at a time in the EBRT machine. I had 43 treatments over the course of 9 weeks. I misstated the number of treatments I received as 45 earlier in this thread.
    So the amount of time is static still, then.

    That doesn't instill additional hope, re. Weez's reference to later-cancers form the Palladium seeds.

    I assume you get tested for cancers of various forms on a regular basis, buzz?... Not just PC, but other related cancers?

    My best guess is that for other cancers, there's other markers tested for, or a rise in white blood cell counts, or ????

    -------------------------------------

    Going to need to get a written inquiry done TODAY, and try to figure out how to direct it to a specific physician in my provider list in one of the many 'safe' portals they are using for HIPAA-'protected' communications. The radio-oncologist's nurse specified this as the better method to get questions to the Doc, but didn't know how the system worked to do that, so we're going to have to figure it out on this end.

    --------------------------------------

    Woke up in the middle of the night again, about 4:00 A.M., after going to sleep way late (1:30 A.M.). My left ankle was cramping up again, though not as badly as recent events.

    -------------------------------------

    Hadn't weighed myself in the last couple days, so when I headed for the restroom at about 4:00 A.M., I stepped on the relatively consistent digital scale, and have lost another 5 lbs.!!

    This is no longer a 'wait and see' issue for me; there's now some limited or mild bowel issues occurring at this time, and I'm thinking I need to make a concerted effort to 'stop the drop'.

    So I got up fairly early (6:30 A.M.), grabbed a fresh avocado, some salsa, and seasonings, along with a splash of lime juice, and decided on a whole avocado, turned into guacamole, of sorts, and am eating that.

    The flavor of this stuff, versus dipping the avocado out with a spoon and nothing on it; night and day. YUMM.

    CBD oil hasn't been scanned by the USPS since it arrived at the origination P.O. I hope it's just another classic moment when they often, of late, scan it incoming, then send it on without a scan out.

    Otherwise I may need to head into one of the canna shops, and score an as-of-yet, unknown source's CBD tincture, or??? I can phone around and see who has what, and cross-reference to the better oils listing I have here.

    -----------------------------------------

    Didn't have time or energy after the town run last night, to make any THCa extract, but we're supposed to be between +13 to +15 today below the inversion, and perhaps +mid-30's above the inversion, higher up in the hills. We'll find out which side f that we're on today, and maybe get this done today. Otherwise, toward the end of the week, we're looking to see -30 f for lows, and 0 for highs.

    Nature's delivered yet another ultimatum. She doesn't seem to care too much about my energy levels, or sunlight and chores.

    -------------------------------------------

    Steve Vai

    Covering Hendrix's 'Little Wing'

    https://music.youtube.com/watch?v=R6...MVMI1SQR4FnRoc

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  • buzzmobile
    replied
    I spent 10 minutes at a time in the EBRT machine. I had 43 treatments over the course of 9 weeks. I misstated the number of treatments I received as 45 earlier in this thread.

    Leave a comment:


  • Guest's Avatar
    Guest replied
    Friends in the Yukon Territory from the Hippie School Days offered money if we need it.

    Another acquaintance offered air miles for travel.

    We've declined the money and air miles for now, knowing if things get dire, then... humbleness is on the menu

    Former priest who grew apart from formal religion and was also at the School then, though several years before me, continues to correspond re. his amazing recovery from PC, and his 2 brothers who scored a dose of it too..

    His surgery was done with a cross-over technique, maybe somewhat experimental at that time, using hormone suppression therapy, but only 2 injections, to shrink the prostate and tumors within, and then surgery by a surgeon who, at that time, years ago, was THE urology surgeon guru in Canada.

    He got his taken care of while the numbers were small, yet 5 of 8 cores had cancer. Too many!!

    He's doing well, and only one of the brothers has had recurrence of the cancer.

    Then there's the folks here, who offer information, personal testimonials, music links in PM's, comradery, sometimes a delivery of needed medicine in need (Seattle), and more.

    There's a lot of times my head is spinning from who-knows-what, and waking with pulse rate and noteworthy anxiety.

    Thanks folks.

    Sincerely.

    ----------------------------------
    ---------------------------------

    Blind Faith, Live in Hyde Park, 1969

    About 47" of priceless nostalgia.

    https://www.youtube.com/watch?v=F7ADa0l9k0A

    Steve Winwood, Ginger Baker, and Eric Clapton were all so young!
    Last edited by moose eater; 01-23-2021, 03:44.

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  • Guest's Avatar
    Guest replied
    Made all of the stops, and ended up in conflict with folks not respecting space again.

    Ended up eating a half of a Hydroxyzine 35mg, which was light-weight, but got my pulse and head straight, in order to contend with the trip and BS. A LOT of stops today.

    Desk person at the insurance office was mask-less (the irony).

    Woman in front of me in the grocery store takes has mask away from her face, and peeks around the plexiglass shielding the clerk, as though the whole purpose of masks is some costume ball, and cultural norm of seeing the mouth when speaking, over-rides the clerks obvious and intentional safety apparatus.

    I asked the cashier if many folks do that (he was new and in training). He acknowledged they do it quite frequently. I told him that if I was OBVIOUSLY sequestered in such a manner, for personal safety, and some idjit did that, I'd be apt to beat them with a fish club.

    That was after the woman behind me came right up my back-side at 8 to 10 inches, and starts unloading her stuff next to mine. I was fed up before I even got half-way through my missions, and in that case, said more than audibly, "SIX FUCKING FEET!!!!"

    She replied, "I'm sorry" in what I perceived as disingenuous tone, and I retorted, "GOOD!"

    I told the clerk in the others' presence, "Ya know, we've been doing this shit for 10 fucking months now, and some persons STILL don't get the protocol!!" Remedial bastards!!

    Folks at the test area at the airport let me do my own swab again; coolness. I barely want MY hands near my face, I sure as shit don't need theirs.

    The nice part was, when I arrived, I was the ONLY one there.

    I asked if they could share how much they make, facing hundreds of deplaning folks, many of them infected, at such a location. They declined to report THEIR wages, but said a new company is taking over the contract at the airport, and stated that company is hiring right now for $18/hr. I was shocked, as that's what my older son makes (a little bit more, but not much) as a courtesy clerk at a grocery store, and these poor bastards are swabbing mucous membranes of complete strangers for the same money as someone who asks, "Do you need help with those groceries?", or fills in for a cashier on break.

    Shook my head at the corporate model and its expression of greed in this pandemic.

    Was glad to be away from the masses.

    Hopefully no more trips in the next 11 days, though if my younger son goes in, I will remind him that I neglected to re-stock on plant-based sausages. Got meds, groceries, and everything else done; no need to head back in for a while.

    --------------------------------------

    Bruce Cockburn

    'Lovers in a Dangerous Time'

    Bruce is graying like the rest of us. Still an amazing guy.

    https://www.youtube.com/watch?v=NKjgJ3oLJqE

    Favorite line from this tune, since decades ago: "Got to kick at the darkness 'til it bleeds daylight." YESSSSS!!!

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  • Guest's Avatar
    Guest replied
    Originally posted by Weezard View Post
    Saw the same stats.
    Also saw that radiation turns the area to mush so is a one shot thing for remission. Can later be used to shrink mets, but not remission.
    On the other hand, recurrence after surgery is treatable with radiation.
    My surgeon wanted to irradiate the prostate bed and feed me chemo post surgery as a just in case. I declined.

    Why?
    PC grows too slowly for chemo to be effective.
    And radiation seed RICs (radiation induced cancers), that pop up after 15-20 years.


    His goal was to prevent recurrence regardless of the damage it might cause me.
    Surgeons are rated by their success rate, yah?
    When I got serious about the RSO I made no other changes.
    Being in the rare position of having a marker, (PSA) to chart progress, I eliminated other variables. Was not that risky all things considered.
    Knowing that the information gathered could be gold to other patients, I documented it all with lab tests and photos.
    The photos are from my dog's mammary cancer remission.
    My medical record and my vets notes may take the fear factor out of some folk's decisions.

    Been 14 years and change. So far, so good.
    Aloha,
    Weeze
    Yeah, my condition is substantially further along than buzz's was, but in those days since, just as surgeons are different, sometimes with better techniques and equipment, application of radiation is, or can be different too, from what I'm learning. buzz's condition was far lesser in development than mine, from what we know, and yet his time in the exterior radiation tx was far longer than what I've been told; I think buzz said he was in the tube for 45" or something at a time (correct me if I got that bass-ackward, buzz), and this guy is talking about 10" at a time, if I recall what he said correctly.

    And of course, I have no clue re. changes in Palladium seed tx, if any. I was surprised to learn these things are custom fitted.

    But I'm not yet done deciding.

    I need to get the questions answered re. both review of what was said the other day, and stuff I neglected to ask.

    The radio-oncologist's nurse said that those might be best sent through one of the many hospital-related portals, of which I'm now in enough of them, that I've got names of systems and passwords literally taped to the edge of my computer desk's book shelf, all across the shelf. with little slips of paper, sometimes even doubled-up.

    Anyway, one more post, and park the car after the successful town trip.

    Thanks again, Weez.

    -----------------------------------------------

    Bruce Cockburn

    From his 1971 or 1972 Lp, 'Night Vision'.

    'You Don't Have to Play the Horses"

    My now-deceased sister brought this Lp on vinyl back with her after hitching across Canada in the mis-1970s. Still have it here, as well as on CD, and maybe cassette. First time ever I heard an electric banjo.

    https://www.youtube.com/watch?v=U4yYOATYgdM
    Last edited by moose eater; 01-23-2021, 04:02.

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  • Guest's Avatar
    Guest replied
    Originally posted by buzzmobile View Post
    That's what I was referring with my earlier comment. What I remember re. percentages was that EBRT and radical prostatectomy had similar outcomes as far as survival rates with the stage of my cancer. My parameters were least invasive/most effective. I rolled the dice and took the leap and whatever cliche fits is what happened.
    Thanks, buzz.

    My intensity and hopes may have the surgeon passing me off to the radio-oncology team, or hoping to.

    I went to the best I could find in my network, after hearing the remarks of folks who I now, somewhat privately, regard as 'bush league.'

    Yes, as Weez says, surgeons are rated by their success rates, and larger hospitals with more money, more specialized teams, state-of-the-art NEW Multi-Million $$ equipment, etc., are absolutely going to have better successes.

    Those were some of the key factors in wide-ranging outcomes between clinics, per JAMA.

    When we're watching tens of thousands of $$ fly across the table at a time, I figure $1,300 or $1,600 for a hotel room for a period, or for a month+ in a studio apt., if I decide to go with radiation, plus several hundred $ for some wholesome groceries from the nearby organic grub store, another couple hundred $ for the town car service, is all small change in the grand scheme of things, if it ends where I want it to.
    -------------------------------------------

    Full 25" interview with 'Country Joe' McDonald, re. the hippy days, Woodstock, the Peace & Love movement, and more. The more I hear from him, the more I respect and like him. Funny stories about how he ended up on stage at Woodstock, and how much Americans and westerners love to yell the word "FUCK!!" when encouraged.

    https://www.youtube.com/watch?v=Vqt4fq-VVcM

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  • Weezard
    replied
    Saw the same stats.
    Also saw that radiation turns the area to mush so is a one shot thing for remission. Can later be used to shrink mets, but not remission.
    On the other hand, recurrence after surgery is treatable with radiation.
    My surgeon wanted to irradiate the prostate bed and feed me chemo post surgery as a just in case. I declined.

    Why?
    PC grows too slowly for chemo to be effective.
    And radiation seed RICs (radiation induced cancers), that pop up after 15-20 years.


    His goal was to prevent recurrence regardless of the damage it might cause me.
    Surgeons are rated by their success rate, yah?
    When I got serious about the RSO I made no other changes.
    Being in the rare position of having a marker, (PSA) to chart progress, I eliminated other variables. Was not that risky all things considered.
    Knowing that the information gathered could be gold to other patients, I documented it all with lab tests and photos.
    The photos are from my dog's mammary cancer remission.
    My medical record and my vets notes may take the fear factor out of some folk's decisions.

    Been 14 years and change. So far, so good.
    Aloha,
    Weeze

    Leave a comment:

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